Researcher: Rachel Burgess
865-444-3518
Study is IRB Approved: #F20-23
My name is Rachel Burgess and I am currently a graduate student obtaining a Master’s in Occupational Therapy. I am looking for participants for my graduate thesis. My thesis is titled “Social Participation in Young Adults with a TBI.” Participants will be asked a series of questions that will have them reflect on the perceived impact their TBI has had on their social world. I have been IRB approved through my university. If you would like to participate, know someone who would like to participate, or want to know more about my thesis, please contact me at raburgess2019@tnwesleyan.edu
What is this study about?
Purpose
The purpose of this phenomenological research study will be to discover what areas of social participation are impacted the most in YA with a diagnosis of TBI.
Objectives
-
This study aims to create a better understanding of the client’s point of view through qualitative interviewing to discover what areas of social participation young adults feel are impacted the most from a TBI.
-
It also aims, with guidance from the background literature, to develop relevant programs to address these areas.
-
In expansion, there is an aim to collect more conclusive results on the client’s experience around 1-year post-diagnosis
Abstract
The issue this study addresses is that social participation in young adults with TBI is not widely researched, especially in OT’s scope of practice. Current TBI studies are focused on the why (why there is reduced participation) and how (interventions) to solve complications due to TBI, but not the what (what is impacted). The young adult population experience a myriad of contexts that influence their social participation, which in turn, affects their psychological and physical outcomes. There is currently no conclusive result of what aspect of social participation young adults (YA) feel are impacted the most due to their TBI. The purpose of this phenomenological research study will be to discover what areas of social participation are impacted the most in YA with a diagnosis of TBI. Creating more conclusive results about the perspectives of YA will lead to a better understanding of this population’s lived experiences. Data will be collected through qualitative interviewing with TBI clients and their caretakers. This interviewing will be conducted virtually due to COVID-19 restrictions. The findings that are expected to be found will be categorized in themes that describe the areas of social participation YA feel are the most impacted by their TBI. OTs treating this population with TBIs will be more aware of relevant client goals and incorporate the social participation aspect into treating physical and mental impairments. These findings support the use and success of client-centered intervention.
What we are asking from you
What you will do
We will ask you to answer 25 guiding questions about non-identifiable demographics, your perceptions of the impact of your TBI on the areas of social participation, and your experience and perception about current treatment. Interviews are expected to last between 60-90 minutes. You will not be asked to do anything else outside of answering questions for this study.
Eligibility: Participants must be between the ages of 18-36 and sustained a diagnosed TBI in the last 5 years.
What are the risks?
Foreseeable risks or discomforts include feelings of sadness or anxiety from discussing the experience and impacts of a TBI. We do not anticipate any legal, physical, or social or economic risks. Resources will be provided before interview is implemented.
What are the benefits?
There will not be any direct benefits from participating in this study. However, there will be indirect benefits. Through participation in this study, it will add to the overall knowledge of human experience with TBI, particularly in the young adult population. It may benefit the research field in the young adult age range. Information from this study may benefit the occupational therapy profession in the implementation of intervention planning. We hope to learn more about the perspectives and experiences of the impact of a TBI in young adults.
Consent
Why is consent important?
Consent is important to ensure the participant's understanding of the study and what they are requested to do if they choose to participate. Consent is important for both the researcher and client to conduct an ethical study.
Do I have to participate?
Participation in this study is voluntary, and you may refuse to participate before the study begins, discontinue at any time, or skip any questions that may make you feel uncomfortable.
What happens if I do not want to continue?
You will not receive any penalty for discontinuing to participating in the research, nor will it have any effect on your relationship with Tennessee Wesleyan University, organization you are involved with, or services received prior to this study.
Contact Information
School: Tennessee Wesleyan University
Department: Master's of Occupational Therapy
Address: 2001 Laurel Avenue Suite N604 Knoxville, TN 37916
Phone: 865-444-3518
Title of Study: Social Participation in TBI
IRB contact information: research@tnwesleyan.edu.